Narcolepsy/Other Hypersomnias
I was wondering if any other people with narcolepsy or other hypersomnias were around and if we could share coping skills. I am fairly recently diagnosed, and the first medications I put on helped my sleepiness a great deal, but I still suffer a great deal of anxiety going out for fear of experiencing problems away from home. I have a daylight, and am trying to work out medication timing, and I think I am improving, but experiencing irrational fear due to earlier problems.
@raspberryKitten7086
It sounds like a great idea to connect and share experiences. Sometimes someone has to start to get others attention to participate in such discussions.
I have no narcolepsy but I can relate to the fears and insecurities being away from home. Most often it's overthinking, since well, maybe nothing bad happens at all or it's managable if something happens.
What are your fears that many you feel unsafe when you're thinking about being away from home?
@kindSoul10 I'm afraid of cataplexy publically leading to hitting my head and getting put in an ambulance somewhere due to liability issues. I'm also afraid of becoming sleepy enough that i have to doze in a bathroom.
@raspberryKitten7086 I see, how that worries you. Can you think of safety measures, like having someone go with you to minimize risks of injuries?
@raspberryKitten7086
I have hypersomnia, but not cataplexy. I am also recently diagnosed, so I'm afraid I can't offer you much other than sympathy. :/ You said your medicine seems to be helping? That's a blessing. Do you also practice calming techniques? I know a lot of cataplexia is triggered by hightened emotions.
