Skip to main content Skip to bottom nav
Lolala
430 M Embraced 3
PathStep 2 Compassion hearts16 Forum posts1 Forum upvotes4 Current upvotes4 Age GroupAdult Last activeJuly, 2020 Member sinceNovember 22, 2018
Bio
Recent forum posts
Lolala profile picture
Epilepsy and fears related to it
Disability Support / by Lolala
Last post
 July 27th, 2025
...See more I think it is really important to talk about how epilepsy has caused me to be constantly afraid of having a seizure, constantly afraid of falling and humiliating myself in front of others. afraid of dying of course. i know it happens in a lot of other illnesses as well but at least for me, i am terrified of having a seizure. I also think it is really important to understand how we treat ppl with epilepsy bc sometimes they need to laugh about it but also sometimes to cry and it is difficult and challenging. But definitely don't ever treat them like a "sick kid" and not only ppl with epilepsy but with every illness idk if you felt it but it effected me so much ppl Only talk to me about things related to epilepsy I know it's because they're worried about me but it doesn't matter I'm a human being epilepsy is not my personality it does not define so talk to me about me! Not about epilepsy because we are not the same!!!!!!! Djsksjss im sooo alone so sad and so scared as i am writing this but this is so important and ppl need to know this - it made me feel so far away from the people i love bc it made me feel like I'm nothing but sick, like they don't see me as anything but as sick. I love my family and friends but i wish they would never talk to me about epilepsy agaaaiinn never again!
Search more from @Lolala
Considering Therapy?
Talk to an expert therapist
Badges & Awards
9 total badges
Hand Shake Linked Quintet Chief Chat Reconnect First Post Reaching out First Compassion Evolution
Report an issue