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LuciIIe
42,685 M Crossing Mileposts 3
PathStep 14 Compassion hearts490 Forum posts5 Forum upvotes4 Current upvotes4 Age GroupAdult Last activeFebruary, 2018 Member sinceNovember 2, 2016
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I'm back.

Somehow.




I'm an idiot.

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My life with Panuveitis.
Disability Support / by LuciIIe
Last post
 April 24th, 2017
...See more I just needed somewhere to let out my feelings. Panuveitis, it's the rare form of Uveitis, which is an eye disease and it's also an autoimmunity disease. What I did initially is, it gave me floating blurs that annoyed me. They'd dance around my eyes. Then it got worse and eventually after a while, it made my left eye blind. Skip a while and I'm now visiting several specialists on a weekly basis. I have to take around 10 pills a day, a injection every two weeks and I get blood tests every time I go. I get the worst headaches, and I have 0% immunity system because of my illness. I get the worst colds, my eyes hurt, I feel terrible on average and what's the verdict? My doctors tell me my medicine isn't working how they thought it would. I'm now currently in that not knowing what to do, not even my specialists know what to do. And no, I can't just change specialists. If anyone has Uveitis or Panuveitis, could you help me with some coping methods? There really is none besides wearing glasses I've found.
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