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MildJo
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PathStep 8 Compassion hearts31 Forum posts3 Forum upvotes10 Current upvotes10 Age GroupAdult Last activeSeptember, 2024 Member sinceFebruary 14, 2023
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A student with IBS
Disability Support / by MildJo
Last post
 January 24th, 2024
...See more Hi, I know it's a long text but I would appreciate anyone's point of view or experience💕 I'm Rose a high school student. I've been having trouble with my health since middle school and it's really been getting worse these past year - especially the past two months. I have this thing called IBS (irritable bowel syndrome) but I also struggle with migraines. IBS is a common digestive disorder characterized by abdominal pain, bloating, and changes in bowel movements. Its exact cause is unknown, but it is believed to be related to gut-brain axis dysfunction, stress, and food intolerances. It can be managed through lifestyle changes and medications, but currently has no cure. I've been "diagnosed" with IBS in 2021. My type of IBS causes me to have pretty bad chronic pain and to feel nauseous. Throughout my battle with this disease I have good weeks, but also bad weeks. I've been doing the fodmap diet which helped make my life quite normal again, but this year has just been ***. I don't even know what to do anymore. I know two and a half years of this thing doesn't sound that bad, but hear me out. When I need to test new foods to add to my diet it might turn out to be a "bad" and cause me abdominal pain, bloating and nausea. From then on it depends. I might not be able to get back on track with life for a week because the "bad" food I ate causes me to have flare ups (after I eat) of pain and bloating even if I would eat the food that doesn't cause me abdominal pain. But maybe I will be totally fine (that doesn't happen much though😔). To get back to my story. I've been having the bad weeks for about two moths now I think. I've missed probably one month or more of school on and off. This caused a lot of problems with my family. To give you more inside; One time me and my mom went to one of the doctors to help with my IBS and he got an idea that my mom really loved. The idea was that I should try and push trough the pain and everything will be back to normal. But from my experience it's pretty hard to push through and ignore chronic pain. Back to the story. Well my mom just wants me to push trough the pain and move on. But it hurts so damn much and I'm not that strong to be able to ignore it anymore - it's been really bad these past few months. When a school morning comes I'm exhausted from the night, because I've been in pain most of the night without getting enough sleep, and I just don't have the energy to go to school. When she comes into my room to wake me up and hears me telling her I can't go to school she gets super angry and stressed. She knows every day more I spend at home the more trouble and stress I'll have trying to get back on track with school work (I'm an A student for contexts). Mornings like that we end up yelling at each other and just *** about one another. Long story short my father usually interferes and supports me staying at home which causes them to fight too. I feel so bad for being the reason for that. And because the past few month have been so awful their fight escalated too. Just this Monday my mother came back to my room, after I told her I won't be going to school that day, and she was sobbing, frustrated, angry (basically any emotion you can think of) and started to yell, cry and question me why am I doing that to myself, to them, if and I quote "want them to get divorced" because I seem to not be wanting to get better by lying in bed all day feeling sorry for myself. I don't know what to do anymore. I've been trying for so long to get back up every time IBS causes me to fall, but I just don't have the energy to get back up and try again, because there's no cure to it. It never stops man! I've been to soooo many doctors in the past few years and they tell me I'll need to figure it out myself. Jesus man I'm not even 16yo yet, but I'm suppose to do it alone? How can you expect me to do that?! Please I'm begging, has anyone had a similar experience with IBS, family, health...? Please I need help I have nobody. I feel so alone in this 😔
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