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TeaSprite
130 M Embraced 1
PathStep 6 Compassion hearts10 Forum posts3 Forum upvotes5 Current upvotes5 Age GroupAdult Last activeNovember, 2021 Member sinceOctober 20, 2021
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Lonely and currently dealing with chronic pain. Tonight it feels like I'm burning.
Disability Support / by TeaSprite
Last post
 December 19th, 2021
...See more I haven't been on 7cups in 6 years and a lot has changed on the app and with me, mostly physically. Over the past 5ish years I was dealing with chronic back pain but the last two years things have gotten a lot worse. I not only have constant back pain but as of 4 months ago chronic headaches every single day with migraines mixed in. Polyneuropathic pain that feels like my whole body is being dipped into hot oil, which tonight it's extremely bad in my hands and arms. Aches and pains all over. I've been to the ER multiple times. My old PCP believes this is all anxiety even though my anxiety is getting better while my pain and other symptoms are getting worse. I'm trying to switch to a new PCP but having issues with the clinic. Autoimmune conditions have been ruled out at one of my many ER trips, no tick borne diseases either. I'm pretty much prefectly healthy but feel far from it. ER doctors have questioned if I'm actually in as much pain as I say I am because I don't "look" like I'm at an 8 and because I'm young (23). I am seeing a neurologist. He has been very good and not dismissive of my symptoms because of my diagnosis of anxiety. I had a lumbar/thoracic spine MRI done that showed nothing concerning. My head and cervical spine MRI did show some issues but nothing that really explains my symptoms. I apparently have some disc problems that is causing arthritis in my neck and I have a cavernoma on the left side of my brain that could cause seizures but otherwise isn't an immediate danger. It feels like a whole lot to unpack with no answers and just a lot more questions. I don't see my neurologist until the 28th. I went to the ER on Thursday for a week long migraine unresponsive to my at home medications. The relief only lasted 8 hours and I woke up at 3am with a horrible headache again. My neurologist prescribed me steroids to hopefully help if it doesn't help I'll have to go back to the hospital for admission to get more IV meds and a further work-up I guess. Im really scared to be in the hospital alone with my social anxiety, I have a hard time asking for stuff that I need or expressing how I feel, that's why I always have my mom with me just in case I shut down or get too nervous to do something. It's very overwhelming and I feel really lonely because my boyfriend doesn't really understand and we are in a long distance relationship so it's hard. My other friend is terminally ill but does understand my pain but when she passes away I'll have no one that understands or could help me through this confusing and painful journey. I'm sorry if this is all over the place.
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