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Wendy14
27 1,858,881 M Meaningful Journey 13
Surviving...
PathStep 2,730 Compassion hearts68,316 Forum posts116 Forum upvotes342 Current upvotes342 Age GroupAdult Last activeNovember, 2026 Member sinceAugust 13, 2015
Bio

╭──────── ⋆｡˚•🍃• ⋆｡˚ ────────╮

                    𓆩 Wendy 𓆪

               ◡ they/them

 🌿I am laughing, just not externally🌿

╰──────── ⋆｡˚ •🍃• ⋆｡˚ ────────╯


The hardest thing you will ever

have to do is forgive yourself  


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#moon4lyf 











Recent forum posts
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I'm 1 in 10: My endometriosis story update
Women's Issues / by Wendy14
Last post
 December 2nd, 2025
...See more Hello all, It's been over 2 years since I've written I'm 1 in 10: My endometriosis story [https://www.7cups.com/forum/women/Discussions_2507/Iam1in10Myendometriosisstory_299546/] (if you are interested in reading my story you can click the link above, please note that this current post will be an update on the situation written previously). 🎗 I thought it was finally time for a little (or maybe not so little) update. As many of you know I've been dealing with Endometriosis chronically since 2019, I was officially diagnosed in 2020 via laproscopic surgery (also known as keyhole surgery). Unfortunately my pain didn't go away after surgery and it actually got worse between 2020 and 2022. In 2022 I had my second excision surgery which went great and for a short while I was actually pain free. Shortly after surgery I got pregnant with my daughter who was born healthy in December of 2023. After I gave birth the  pain started coming back slowly again, though it was bearable. In December 2024 I went back to my specialist to discuss further plans as my pain had gotten worse and worse, I struggled with alot of bowel symptoms. They did an MRI which showed no deep endometriosis (deep endometriosis means endometriosis growing inside other organs/tissue/muscles) and I was referred back with the advice to just learn to live with it and try out the TENS (Transcutaneous Electrical Nerve Stimulation, a pain relief therapy that uses mild electric currents through electrodes placed on the skin). My doctor told me that my endometriosis was probably back but not showing on an MRI (which is normal as endometriosis can 'hide' from imaging and can be hard to catch as it only shows deep endometriosis if anything at all) but due to my surgery history and the endometriosis repeatedly coming back they told me surgery would be more risky than helpful. She also told me that my symptoms related to my bowels were not from endometriosis though and referred me back to my GP. I went back home feeling defeated and lost, if it wasn't endometriosis then what is causing all my symptoms? Back home I started  a whole new path of tests and trying new diets to rule out allergies, bowel diseases etc. During this time all my pain and symptoms only gotten worse and the tests all came back normal. I really couldn't handle the pain anymore and decided I needed to take steps, I decided to go for a second opinion abroad. The wait list was only 3 weeks so things went really fast. And on september 10th of this year I had my appointment. During my appointment they did a detailed ultrasound, the ultrasound showed adhesions on my bowel and uterus (meaning my bowel and uterus are stuck together), it also showed an 8mm endometriosis nodule on my bowel. The professor who did the ultrasound told me he could say with a 100% that it was endometriosis on my bowel. Hearing that almost brought me to tears, I wasn't crazy, I was right all along and finally someone believed me and actually confirmed it. After my ultrasound I saw the endometriosis specialist and he talked me through treatment options, they told me they are able to perform surgery to remove the endometriosis tho it's a complex and risky surgery due to the amount of adhesive tissue seen on the ultrasound. Sadly this doctor is private and isn't covered by insurance and the surgery alone will be around £20k. When I got back I had alot to think about, how am I going to pay for private surgery? But leaving it like this and not doing surgery could damage my bowel, so do I really have a choice? Recently I went back to my own specialist with the new information and requested a reconsideration on if they could perform this surgery here. On dec 11th (next week) I hear if they consider doing the surgery. I know this update is nothing but positive and I wish I could have told you all I was still pain free and my second excision surgery was a longterm success, but unfortunately it's not. Sadly endometriosis is a chronic disease with still no cure or cause, it's unknown and not much research was done. I hope my update after the 11th will be more positive and I can tell you all they are scheduling my third surgery. Thank you for reading and remember that heavy periods, intense pain during and outside of your period is not normal and shouldn't be normalized. If you are currently in a similar situation or are unsure whether or not you have endometriosis, don't give up, fight for your wellbeing, you deserve to be heard, understood and taken seriously. I'm very passionate about endometriosis and I am always open to talk about this with anyone who wants to learn about endometriosis or wants to talk about having this illness, you can find me in the forums or in the rooms for a chat on endometriosis ❤️
Wendy14 profile picture
I am 1 in 10; My endometriosis story
Women's Issues / by Wendy14
Last post
 December 1st, 2025
...See more Hello everyone, Today is the first day of Endometriosis Awareness Month. Because of this I would like to share my Endo story. I am 1 in 10 I was diagnosed with superficial endometriosis in June 2020, during my surgery they found superficial endometriosis on my bladder, ligament, douglas and peritoneum. They removed the endo and I thought the years of chronic pain and heavy periods would be over, but I was wrong. After surgery I never fully recovered, my pain never went away and only got worse throughout the next 2 years. Every time I went back to my doctor saying my pain got worse and I was suspecting endo near my bowel and adenomyosis (endometriosis in the muscular wall of the uterus) my doctor dismissed me and my symptoms. Unfortunately this is the reality of dozens of women worldwide struggling with endometriosis symptoms, to this day doctors still normalize these symptoms taking getting a diagnosis 8 years on average after first experiencing symptoms. After my first surgery in 2020 my bladder got damaged and I’m now struggling with incontinence on top of all the other chronic symptoms I already struggled with due to Endometriosis, these include heavy cramps, chronic pelvic pain, central sensitization, chronic fatigue, difficult bowel movements and bladder issues. After 2 years I asked for a second opinion with another hospital specialized in deep endo. I had an MRI and after a month or so I was scheduled for another surgery. This time my endometriosis got severe, I had 2 surgeons operating on me finding a mess going on in my belly. The doctor said it was really bad considering I had another surgery only 2 years prior. This time they did not only find superficial endometriosis but deep endometriosis (deep endometriosis means the endometriosis tissue grows inside of the organ/tissue/muscle instead of on the outside layer of it) There was deep endo on my ureter and pelvic wall, my bowel was completely stuck to my abdominal wall, my ovaries were stuck together all because of adhesion, luckily they removed all the endo and adhesions. My recovery is going well and I finally can say I am pain free, my chronic pain doesn't affect my life like it used to anymore and I can slowly start healing and working towards getting my life back. Endometriosis is an invisible illness, my family struggled to understand what was happening and why I was in so much pain, they thought like many others it was just having a heavy period, they didn't understand it was taking over my whole life, limiting me in so many ways, many times I was told I was just lazy because no one saw my pain, no one saw what was going on inside of my body. It doesn’t only affect the body but it also affects the mind. I felt misunderstood, alone, angry and sad. I didn’t want to be chronically ill, I didn’t want to change my life and adjust to my new reality, I had to give up many hobbies because my body just couldn’t take it anymore. It’s very sad to see how not many people speak up about the grief someone with chronic illness goes through, grieving their old life, the things they had to give up. I hope my story helps others struggling with this awful illness to feel less alone. You are heard, you matter and you have the right for treatment and to be taken seriously. This type of pain is not normal. It’s okay to be angry, upset and sad. It’s okay to take things slow and to have bad days. Don’t give up and keep fighting for the right help. I hope one day we will get a cure to this illness so we can finally say we overcome Endometriosis.
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