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norabell
1 1,569 M Little Steps 6
PathStep 2 Compassion hearts44 Forum posts5 Forum upvotes7 Current upvotes7 Age GroupAdult Last activeJanuary, 2026 Member sinceFebruary 13, 2023
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hEDS and POTS
Disability Support / by norabell
Last post
 January 24th, 2024
...See more Hello! I’m 16 and newly diagnosed with hypermobile Ehlers danlos syndrome and postural orthostatic tachycardia syndrome. I’ve been having a pretty difficult time and am looking for others going through similar things. I try to talk to my mom and therapist, but they just don’t know what it really feels like. I just really want to connect with others to try to feel less alone.
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