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stuffiessytem
427 M Embraced 3
PathStep 11 Compassion hearts27 Forum posts3 Forum upvotes4 Current upvotes4 Age GroupAdult Last activeOctober, 2022 Member sinceAugust 22, 2022
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Wheelchair?
Disability Support / by stuffiessytem
Last post
 August 31st, 2022
...See more Should I ask to borrow the clinics wheelchair? It's a manual one. I just really think I'm a fall risk with the amount of pain I am in just walking and standing up and loosing my vision, the dizziness and brain fog. There's even more. I just feel like they won't let me or I'm being dramatic...
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Postural Orthostatic Tachacardiya and Ehlers Danlos Syndrome
Disability Support / by stuffiessytem
Last post
 August 31st, 2022
...See more I hate these disabilities...my parents don't believe that they make me hurt so much and make doing simple things so hard. They hate that I use a cane and body braces but it's hard to go without them. I wish I had forearm crutches so much but they tell me I don't need them and I'm overreacting. I have to walk so much at school so I come home extremely drained and in a lot of pain. My joints feel like I'm gonna fall apart like legos and my head feels like a weight was put on top of it. I can barely keep my eyes open at the end of the day. I have to hide the fact I'm in so much pain because if I spoke up at all, I would be shunned and laughed at. I had a doctor who listened to me but I barely get to see her. She tested me for Rheumatoid Arthritis but nothing came up in my blood tests and so my mom just assumed I was fine. I tried to tell her that it wouldn't show up on blood tests. The day I get crutches and a wheelchair for long distances is the day I will finally be comfortable and happy. That day isn't going to come while I'm under the same roof as my parents.
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