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tearstruck
1 14,596 M Progress Road
🐞🐈‍⬛🪫
PathStep 12 Compassion hearts2,223 Forum posts588 Forum upvotes979 Current upvotes979 Age GroupAdult Last activeNovember, 2026 Member sinceDecember 3, 2023
Bio

Sometimes I'm offline for a bit for health reasons.

Currently 98% bedbound with severe ME/CFS (Myalgic Encephalomyelitis), which is a common, disabling neuroimmune condition. I also have POTS and migraines.

I'm nineteen! 🫶🏻 she/her, Australia 🇦🇺

🪻🪿🐝


– some random quotes and poems –


“Hope” is the thing with feathers -

That perches in the soul -

And sings the tune without the words -

And never stops - at all -


And sweetest - in the Gale - is heard -

And sore must be the storm -

That could abash the little Bird

That kept so many warm -


I’ve heard it in the chillest land -

And on the strangest Sea -

Yet - never - in Extremity,

It asked a crumb - of me.

— Emily Dickinson (1861) "Hope" is the thing with feathers


dum anima est, spes esse

— Cicero (49 BC)


"do not let your illness define you"

is like telling a drowning person

to not be defined

by the sea

— Katie Leeming (2026) 'Sea Glass', I Once Was, Line Langager

The world is glass- it's pretty and sharp- so be careful what you break.

— Lucas Jones (2026), I Still Believe in Miracles

And goodness dies in silence
So I think you should speak.

— Lucas Jones (2026), I Still Believe in Miracles

Per aspera ad astra.

be clear, please:
there is no letting, or not letting, with an illness unfazed by agency, and immune to willpower
an illness that disregards
choices, and wishes
to drown you anyway

there's only
surrender

I just
surrender to the force of it
hope that luck or circumstances outside of my control
allow so that one day, I wash up somewhere on some shingle beach
reformed but retaining something of what I was before
an essence - the core colours
of I - unchanged
still glowing
like sea glass
— Katie Leeming (2026) 'Sea Glass',
I Once Was, Line Langager

the slanting sun shot through
one prisoner illegally visiting another
behind winter's back
— Pam Du Val (2026) 'Dust',
I Once Was, Line Langager

If you wish to make an apple pie from scratch, you must first invent the universe. 

— Carl Sagan (1980)

The cold never lasts, my darling. It just teaches the heart how to burn.

— Raye (2026) Click Clack Symphony

if these words only make sense to me

perhaps it doesn't matter

I don't write to package up my pain

into a palatable pattern

I write to peel the plaster back

on all that lurks beneath

I write so that

just for a short moment

I can breathe

— Eleanor Rose (2026) 'Tapestry', I Once Was, Line Langager

I just don't want to deal with this right now. I'm taking a holiday from dealing. Happily vacationing in the land of 'not coping'.

— Buffy the Vampire Slayer

Self-help

How to stop time:

How to travel in time: read.

How to escape time: music.

How to feel time: write.

How to release time: breathe.

— Matt Haig (2016) Reasons to Stay Alive

You all have a little bit of ‘I want to save the world’ in you. That’s why you’re here. I want you to know that it’s okay if you only save one person, and it’s okay if that person is you.

— Unknown

You have to forgive yourself for not knowing what only time could teach.

"You have two choices

I'll lay them out here;

Be hurt in love

Or be hurt in fear

That's the buy in of life

It hurts while you're here"

"So I'm sorry for that thing that ruined your life. Except it didn't, it just sort of f-d up your night. And I know what you're thinking

But I'll hold you to that when the birds stop singing

If you're listening now then the phone's not ringing

So the crash so far much have not happened

And you're still just driving and not yet crashing 

It's in your hands. You choose what happens.

"So I'm sorry for that thing that ruined your life. 

But the longer you let it 

The sooner it might."

— Lucas Jones

I have only made this letter longer because I have not had the time to make it shorter. 

— Blaise Pascal (1657)


🐞 


Current music / albums:

This Music May Contain Hope — RAYE

Everything I Know About Love, Bewitched, A Matter Of Time — Laufey

you seem pretty sad for a girl so in love — Olivia Rodrigo 

Girl Of Your Dreams — Ashe

Messy, The Art Of Loving — Olivia Dean

It's OK, Still Got Dreams — Nightbirde

Top Tracks — Dolly Parton


🪶 Poetry Anthology some of the quotes are from: I Once Was, an anthology of poetry about Myalgic Encephalomyelitis by Line Langager


That's all.

— The Devil Wears Prada (2006)


Recent forum posts
tearstruck profile picture
💙 ME/CFS Awareness Day 💙
Disability Support / by tearstruck
Last post
May 12th
...See more 💙 May 12th is International ME/CFS Awareness Day. 💙 Myalgic Encephalomyelitis (ME/CFS) is a very common and highly disabling neuro-immune condition. It has been recognised as neurological by the world health organisation since 1969. It frequently begins after an immune trigger such as an infection. The defining characteristic of the condition is Post-Exertional Malaise, PEM, which is a severe worsening of symptoms, with potential for overall illness deterioration, in response to any exertion. The activity that triggers PEM varies based on severity: for someone with mild M.E., this can be exercise, work or schooling, whereas some people with extremely severe M.E. may not have capacity to tolerate light, sound, movement, speech, swallowing or digestion. A large proportion of people with the condition are housebound or bedbound. Many initially begin as mild and deteriorate due to illness progression, improper management, or pressure to fulfil responsibilities and continue pre-illness activity levels.  It is frequently reported to affect 17–24 million people worldwide, with higher recent estimates due to approximately one third of people with long covid developing ME/CFS.  Unfortunately due to a long history of psychologisation it is severely underfunded compared to disease burden, poorly understood by many medical professionals, and there are currently no approved effective treatments. Approx. 5–10% make a full recovery to pre illness activity levels.  Current research indicates an immune basis, with impaired immune cells, significant issues with cellular energy production in muscles and brain, and neuroinflammation. A large scale 2025 study called DecodeME indicated a likely genetic component to predisposition.  Common comorbidities include POTS and other forms of dysautonomia, migraines, MCAS, hypermobility conditions, chronic pain conditions, gastrointestinal issues and more.  Also known as chronic fatigue syndrome, an outdated name which fails to convey the severity of the condition, it is not the same as the symptom of chronic fatigue which is common in many conditions.  Awareness Day is May 12th, for Florence Nightingale's birthday, who was mostly bedbound at age 36 after the Crimean War with a condition now thought to have been ME/CFS. 💙 The awareness colour for ME/CFS is blue 💙 Image Source: https://crunchme.org/visuals General information:  https://emerge.org.au/what-is-me-cfs/ https://batemanhornecenter.org/ Pacing: https://mecfs.org.au/resources/pacing [https://mecfs.org.au/resources/pacing] An example of someone's experience with Severe M.E.: https://m.youtube.com/watch?v=SYLMqnEWRBg Research foundations:  https://www.omf.ngo/ https://www.meresearch.org.uk/
tearstruck profile picture
Holiday lyrics game
Icebreakers and Games / by tearstruck
Last post
December 21st, 2023
...See more Hey! I thought it might be fun to play some kind of guess the Christmas lyric/ finish the Christmas lyric game :) I'll start: The holly and the ivy / When they are both full grown *holly*  🎼But the prettiest sight to see is the holly that will be- Finish the lyric/ guess the lyric, then add a lyric from any song that uses a word from the previous lyric or song, for the next person to guess❤️💚❤️💚🎄 If you can't think of any then feel free to add a lyric from any song you like :)
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