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verysadface
854 M Little Steps 1
PathStep 23 Compassion hearts29 Forum posts5 Forum upvotes5 Current upvotes5 Age GroupAdult Last activeDecember, 2020 Member sinceSeptember 9, 2016
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Disability Support / by verysadface
Last post
 September 21st, 2016
...See more Hello, I'm a 17 years old student from Italy. The disability you can see in the title is really rare and I'm the only case in my country. A lot of problems came with this situation: I don't know if it's going to get worse and I don't actually know anything about it other then what I feel and see in my body. So I'm scared, I was diagnosed a couple of months ago after 16 years of researches. What if my years to live are shorter than the normality? I can't really talk about my preoccupations with my parents or my sister because they never want to have "deep" conversations, they're not capable to handle it. I do exams every month for the sake of researches and go to school normally. My disability is visible but it's not something I'm ashamed, it has never been. Sorry for my English it's not my first language, I just needed to let this out. ps: I know there are like 50 people in the world that have the same thing as me, if you are one of them and know more about the disease please contact me!
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