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...See more Hello. I posted in ARFID support with very, very specific questions so I fear no one has knowledge of that area. I have Avoidant Restrictive Food Intake Disorder. It’s an eating disorder not associated with body image. I do not fear weight gain. I fear adverse reaction. I have texture sensitivities and fear mishandling of food or food spoiling. I also fear adverse reaction with medications and mismanaged health. LIFELONG ARFID led to physical illness in 2021 and I lived on liquid supplements for about 6 months time and lost 24% of my body weight. No one sent me to a dietician or behavioral health. The didn’t even ask if I was drinking water. Or take a look at the supplement drinks I reported as ONLY NUTRITIONAL INTAKE. I reported unable to tolerate meds, including mental health meds. Nothing done. I have a new family doctor set up Tuesday and symptoms of refeeding syndrome. Refeeding syndrome happens when someone is malnourished and reintroduces foods. It can be from an eating disorder or even something like chemotherapy. The body goes wild for lack of better term. My glucose has been elevated at times and my potassium low. I have monitored the potassium with a self referral to cardiology after the emergency department said “you don’t have refeeding syndrome!” Without asking what my intake was or had been for 6 months prior. My stress test revealed a T wave abnormality and I’ve had rates lows 40s at rest to 192 at random. This can happen and be deadly with refeeding syndrome, but also controlled with outpatient replacement of electrolytes (I think) like medical replacement. I don’t know for sure. this primary care appointment is high impact. Does anyone have any tips for avoiding hospital admission?? (what I’ve tried to do all along) there is no specialist for the medical side. I am seeing a psychiatrist who confirmed primary care doctor should have been following all along. I don’t know that anything is serious enough for admission. But I also fear no one will want to “risk it” with me. I will have over 100 pages of previous medical notes to prove I pushed every test and referral myself with the worst insurance possible. I found a drink to stay alive even though I have to take 5 dairy digestive enzymes to tolerate it. Their bottle says suitable for lactose intolerant. So I called the manufacturer who told me the milk protein has such little lactose. Yet I am sick for a few hours if I don’t take FIVE dairy digestive pills. But I do it. Everyday. To stay alive. And still get somewhat sick most days, even taking 5. But I could not tolerate solids. I could not. I thought I was super physically sick. I thought cancer or something. I could not eat out of fear. Once I found ARFID, my entire existence made sense. Finally. So I ended up diagnosing myself and then it was like “Ohhhhhh super anxious patient wants attention!” Attitude from provider. I took my husband to the appointment with me to say “I don’t feel heard” and I was literally asked “what do you want ordered?” And no medical input given. done. New doctor scheduled now, still super super super crappy insurance that I pay so much for and work full time for. I fight on EVERYTHING and they literally don’t supply necessary info. My work HR tells me to call insurance so I do many times and never get supervisor call backs. I leave tons of messages and put pressure on. The most pressure. I am working with a representative from our health department that can help with insurance issues due to this. Last notice, I emailed through my portal with health insurance and said to add to my file, if I need an authorization for outside of my network from this new provider, their failure to tell me process shall NOT result in delayed care for me. It will not. They will pay. Even if they tell me “don’t go. We won’t pay” I will say “I called 12 times and emailed twice and reached out to my HR twice and the state health department who is sending me links and resources. You will pay the bill because I didn’t risk my life” and if they don’t, I will be on TikTok and ABC 6 on your side will be at my house. Trust. I’m competent and have no shame in needing help. None of us choose our diagnosis or our lives due to that. And we shouldn’t be tossed aside like our lives don’t matter. I also self diagnosed myself with autism and my whole life is finally making sense. And I’m mad. 36. And mad. Diagnosed with anxiety at school age. Clinically diagnosed. And medicated off and on. Therapy. Off and on. Everything my whole life. LEARNING DISABILITY ASSESSMENTS AT AGE 16 REVEALING MULTIPLE LEARNING DISABILITIES. I didn’t have a friend growing up. Not a real one. Just ones I masked around. I didn’t have a chance at school. I know I’m not alone. A lot of us are like that. And it’s crap that society does this. I’m sure this will be flagged. But we need reform. Mental healthcare reform. Insurance reform. This is inadequate for human life!!! 36 and felt like I was wrong my whole life. But I wasn’t. And none of us are. We’re just bad asses. 7 cups, before you remove…consider the above avenues I have tried. Consider leaving. I need help. I am seeking any advice or resource or anything you can dream of helping me. Anything. I will take any help. thank you.

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