Based in Boone, NC, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and resources for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. At a time when accurate information and compassionate assistance are crucial, our Family Support team is here to guide families through the complexities of diagnosis and beyond. We offer a range of services including personalized parent mentoring, nutritional education and meal planning, behavior management support, and expert assistance with navigating application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can easily connect with their local PWSA chapter via our online chapter locator or join our supportive Facebook groups for communal encouragement and guidance.