Based in Conover, NC, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team offers vital resources and guidance from the moment of diagnosis, ensuring families have access to accurate information and comprehensive care. We provide essential services, including parent mentoring, nutritional education and meal planning, behavior management support, and assistance with navigating Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking support, we encourage you to connect with your local PWSA chapter or join our supportive community on Facebook.