Based in Indian Trail, NC, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support and resources for individuals diagnosed with Prader-Willi syndrome, as well as their families and caregivers. Our Family Support team is committed to offering accurate information and comprehensive assistance right at the moment of diagnosis, ensuring families are never alone in navigating this journey. PWSA provides essential services including parent mentoring, nutritional education and meal planning, behavior management support, and guidance with application and appeal processes for Medicaid and insurance coverage, as well as Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). To access our support services, families can connect with the local PWSA chapter through our online chapter locator or reach out via email to join one of our supportive Facebook groups.