Based in Jacksonville, NC, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support and resources for individuals with Prader-Willi syndrome and their families. Our compassionate Family Support team works diligently to offer accurate information and comprehensive services at the crucial moment of diagnosis. We provide an array of assistance, including personalized parent mentoring, nutritional education and meal planning, behavior management strategies, and guidance through the application and appeals process for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). At PWSA, we understand the unique challenges faced by families and are committed to empowering them with the tools and knowledge needed to navigate the complexities of this condition. For support, families can easily connect with our local chapter or join one of our supportive Facebook groups.