Located in Rocky Mount, NC, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is a vital resource, offering accurate information and comprehensive assistance during the challenging time of diagnosis. We provide essential services such as nutritional education, meal planning, and behavior management support, as well as guidance through the application and appeals processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support can connect with us through our local PWSA chapter or by joining our Facebook Support Groups to share and find encouragement within the community.