Based in Rutherfordton, NC, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing crucial support to individuals with Prader-Willi syndrome and their families. Our Family Support team is here to offer reliable information and comprehensive assistance from the moment a diagnosis is received. We focus on delivering essential resources, including parent mentoring, nutritional education and meal planning, and behavior management strategies. Additionally, we guide families through the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). If you’re seeking help or resources, we invite you to connect with your local PWSA chapter through our online chapter locator or reach out via email to join one of our supportive Facebook groups.