Based in Carlin, NV, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support and resources for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to offering accurate information and comprehensive assistance from the moment of diagnosis, ensuring families feel empowered and informed. We offer a range of services including parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we guide families through the complex processes of applying for and appealing Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To take advantage of our resources or to connect with our supportive community, please utilize our online chapter locator or reach out via email to join one of our Facebook Support Groups.