Based in Tonopah, NV, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals with Prader-Willi syndrome along with their families and caregivers. Our Family Support team is a trusted resource, offering vital information and comprehensive assistance right from the moment of diagnosis. We provide essential services such as parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we guide families through the often complex application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). If you are seeking support, please connect with the local PWSA chapter through our online chapter locator or reach out via email to join one of our Facebook Support Groups.