Based in Kingston, NY, the Prader-Willi Syndrome Association (PWSA) is committed to providing vital support to individuals affected by Prader-Willi syndrome, along with their families and care providers. Our dedicated Family Support team offers crucial information and resources from the moment of diagnosis, ensuring families have the guidance they need. We provide personalized support through parent mentoring, nutritional education, meal planning, and behavior management, alongside assistance with navigating the complexities of Medicaid applications, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our comprehensive services and connect with supportive networks, families can reach out through our local PWSA chapter or join our online Facebook Support Groups.