Located in Shannock, RI, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to assisting families during the challenging moments following a diagnosis, offering accurate information and comprehensive resources tailored to their needs. We provide essential services such as nutritional education and meal planning, parent mentoring, and behavior management support. Additionally, we guide families through the often daunting processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking assistance, we encourage you to connect with your local PWSA chapter via our online chapter locator or reach out to us to join one of our supportive Facebook groups.