Located in Slocum, RI, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team offers a wealth of resources to guide families during the challenging time of diagnosis, ensuring they receive accurate information and compassionate assistance. Our comprehensive services include parent mentoring, nutritional education and meal planning, behavior management support, and help navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking guidance can connect with our local PWSA chapter through the online chapter locator or join one of our supportive Facebook groups for ongoing community connection.