Located in West Kingston, RI, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team offers reliable information and compassionate assistance right at the moment of diagnosis. We specialize in a variety of services, including parent mentoring, nutritional education, meal planning, behavior management support, and guidance with Medicaid, insurance applications, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) appeals. Families are encouraged to connect with their local PWSA chapter for access to our resources, including our supportive online Facebook groups, ensuring that no one has to navigate this journey alone.