Based in Conway, SC, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team offers a wealth of resources designed to assist families at every stage of their journey, starting from diagnosis. We provide accurate information, parent mentoring, nutritional education, meal planning, and behavior management support to enhance the quality of life for those affected. Additionally, we guide families through the complexities of accessing critical services, including application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking assistance can connect with us through our local chapters or join our supportive Facebook groups for ongoing encouragement and information.