Based in Hilton Head Island, SC, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. Our Family Support team is here to offer reliable information and tailored assistance right when it’s needed most. We focus on empowering families through personalized mentoring, nutritional education, and effective meal planning, while also providing strategies for behavior management. Additionally, we help navigate complex application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support can easily find their local PWSA chapter through our online chapter locator or join our Facebook Support Groups for ongoing community engagement and assistance.