Located in Johns Island, SC, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to providing crucial information and compassionate assistance from the moment of diagnosis. We offer a range of services including parent mentoring, nutritional education and meal planning, behavior management support, as well as guidance through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking assistance, we invite you to connect with your local PWSA chapter through our online locator or reach out via email to join one of our supportive Facebook groups.