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Family Support

Prader-Willi Syndrome Association (PWSA)
Lexington, SC

Located in Lexington, SC, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to delivering accurate information and comprehensive assistance right from the time of diagnosis. We offer a range of vital services, including information and mentorship for parents, nutritional education and meal planning, behavior management support, and guidance with Medicaid, insurance, and benefits applications like Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). We are here to ensure that families have the tools and resources they need for effective advocacy and care. To connect with our local chapter or join a supportive community, families can use our online chapter locator or reach out via email to be added to our Facebook Support Groups.