Located in Lugoff, SC, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals with Prader-Willi syndrome and their families through a range of essential services. Our Family Support team offers reliable information and comprehensive assistance right from the moment of diagnosis, ensuring families have the guidance they need. We provide parent mentoring, nutritional education, and tailored meal planning, along with behavior management support. Additionally, we assist families in navigating the complexities of applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support can easily connect with our local PWSA chapter through our online chapter locator or reach out via email to join one of our Facebook Support Groups.