Located in Okatie, SC, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing crucial support for individuals diagnosed with Prader-Willi syndrome and their families. Our compassionate Family Support team is here to deliver accurate information and comprehensive resources right from the moment of diagnosis. We offer a range of services including parent mentoring, nutritional education, meal planning, and behavior management support. In addition, we assist families with navigating the complexities of application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with us and access these vital services, families can reach out through our local chapter using our online chapter locator or join one of our supportive Facebook groups via email.