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Family Support

Prader-Willi Syndrome Association (PWSA)
Pawleys Island, SC

Located in Pawleys Island, SC, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals with Prader-Willi syndrome, along with their families and care providers. Our Family Support team is committed to offering vital information and compassionate guidance from the moment of diagnosis. We provide a range of essential services, including thorough parent mentoring, nutritional education, and strategic meal planning, as well as behavior management support. Additionally, we assist families in navigating the complexities of Medicaid applications, insurance coverage, and appeals related to Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). Families seeking our supportive services can easily connect with their local PWSA chapter through our online locator or reach out via email to join one of our Facebook Support Groups for ongoing assistance.