At the Prader-Willi Syndrome Association (PWSA) based in Racine, WI, we are dedicated to offering compassionate and practical support to individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. Our Family Support team is committed to providing accurate information and comprehensive resources during the crucial moments following a diagnosis. We offer a variety of services, including personalized parent mentoring, nutritional education, meal planning, and behavior management strategies. Additionally, we assist families through the often complicated processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking support can easily connect with their local PWSA chapter through our online locator or join our supportive Facebook groups by reaching out via email.