Located in Alderson, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital support to individuals impacted by Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is a trusted resource for families navigating the challenges that arise at diagnosis, providing accurate information and compassionate assistance tailored to your needs. We offer essential services including parent mentoring, nutritional education, and meal planning, along with behavior management strategies. Additionally, we guide families through the often-complex processes of applying for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Connect with your local PWSA chapter through our online chapter locator or reach out to us via email to join one of our supportive Facebook groups.