Based in Beckley, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals with Prader-Willi syndrome, their families, and caregivers. Understanding the challenges that come with a diagnosis, our Family Support team offers compassionate guidance and reliable information at this critical time. Our services encompass a wide range of needs, including parent mentoring, nutritional education and meal planning, behavior management support, and assistance with navigating the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families seeking support to connect with their local PWSA chapter through our online chapter locator or reach out via email to join one of our Facebook Support Groups.