Based in Bluefield, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to offering accurate information and comprehensive assistance right at the moment of diagnosis, ensuring that families are never alone on this journey. We provide a range of vital services, including parent mentoring, nutritional education, and behavior management support, as well as guidance through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our resources and receive support, we invite families to connect with their local PWSA chapter through our online chapter locator, or to reach out via email to join one of our supportive Facebook groups.