Located in Clendenin, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and resources to individuals diagnosed with Prader-Willi syndrome and their families. Understanding the challenges associated with this condition, our Family Support team is here to offer accurate information and compassionate assistance from the moment of diagnosis. We provide a comprehensive range of services, including educational resources on nutrition and meal planning, behavior management guidance, and personalized parent mentoring. We also navigate complex systems by assisting families with applications and appeals for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking assistance can easily connect with their local PWSA chapter through our online directory or join one of our supportive Facebook groups via email.