Located in Delbarton, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team offers invaluable resources, ensuring that families receive accurate information and comprehensive assistance right from the moment of diagnosis. We provide essential services including nutritional education and meal planning, behavior management support, and guidance through the application and appeal processes for Medicaid, Social Security Disability Insurance (SSDI), and Supplemental Security Income (SSI). Families can connect with local chapters for personalized support or join our Facebook Support Groups through email. We are here to foster a nurturing environment where families can thrive together.