Located in Fairmont, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals with Prader-Willi syndrome and their families through a compassionate and resourceful Family Support team. We understand the challenges that arise at diagnosis and are here to offer vital information, mentoring for parents, nutritional education, and meal planning. Our comprehensive support also includes behavior management strategies and guidance through the often complex processes of Medicaid applications, insurance claims, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can easily connect with us through our local chapter or by reaching out via email to join our supportive Facebook groups, ensuring no one faces this journey alone.