Located in Hurricane, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, their families, and care providers. Our Family Support team offers vital resources and personalized assistance at the critical moment of diagnosis, ensuring families have access to reliable information and comprehensive help. We specialize in parent mentoring, nutritional education and meal planning, and behavior management support, while also guiding families through the complexities of application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can utilize the online chapter locator to find their local PWSA chapter or reach out via email to join our Facebook Support Groups.