Located in Inwood, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and resources to individuals affected by Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is committed to offering accurate information and compassionate assistance right at the moment of diagnosis. We provide a wide range of services including parent mentoring, nutritional education, meal planning, and behavior management support, ensuring families feel empowered and informed. Additionally, we help navigate the application and appeal processes for important resources like Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our support services, families can utilize our online chapter locator or reach out via email to join our Facebook Support Groups for community connection and ongoing assistance.