Based in Mannington, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome and their families through a range of vital services. Our Family Support team offers accurate information and comprehensive assistance right at the time of diagnosis, including parent mentoring, nutritional education, and meal planning. We are here to help families navigate behavior management support and guide them through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). If you’re seeking assistance, please reach out via our local PWSA chapter or connect with us through our Facebook Support Groups for community engagement and support.