Located in Morgantown, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support to individuals diagnosed with Prader-Willi Syndrome, their families, and care providers. Our Family Support team is committed to delivering accurate information and comprehensive assistance during the critical moments following a diagnosis. We offer a range of programs including parent mentoring, nutritional education, personalized meal planning, and behavior management support. Additionally, we guide families through the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking assistance can easily reach out to their local PWSA chapter through our online chapter locator or connect with us via email to join one of our supportive Facebook groups.