Located in Mount Hope, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. Our Family Support team is a trusted resource, offering accurate information and extensive assistance during the crucial time of diagnosis. We focus on delivering personalized support that includes parent mentoring, nutritional education, meal planning, behavior management, and guidance through the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families seeking help to reach out to their local PWSA chapter through our online chapter locator or connect with us via email to join one of our supportive Facebook groups.