Based in New Cumberland, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital assistance to individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. Our Family Support team is here to provide accurate information and comprehensive guidance right from the moment of diagnosis, ensuring families feel supported and informed. We offer a range of services, including parent mentoring, nutritional education, meal planning, behavior management support, and assistance with navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with local support, families can utilize our online chapter locator or reach out via email to join our Facebook Support Groups. We are committed to empowering families with the resources they need during these challenging times.