In Ona, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team offers a wealth of resources, including accurate information right at the time of diagnosis, parent mentoring, nutritional education, and meal planning guidance. We understand the challenges that can arise, which is why we also provide behavior management support and assist families in navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our services and community resources, families can reach out through our local chapter’s online locator or join one of our supportive Facebook groups.