The Prader-Willi Syndrome Association (PWSA) in Romney, WV, is dedicated to offering vital support to individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team provides essential resources and assistance right from the moment a diagnosis is confirmed, ensuring families receive accurate information and guidance. We offer a range of services, including personalized parent mentoring, nutritional education and meal planning, behavior management support, and help navigating the application processes for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Connect with us through our local chapter for support and discover a community that understands your journey.