Based in Ronceverte, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome along with their families and caregivers. Our Family Support team is a reliable resource for families seeking accurate information and comprehensive assistance from the moment of diagnosis. We offer a range of vital services, including personalized information and support, parent mentoring, nutritional education and meal planning, and behavior management guidance. Additionally, we help families navigate the often complex application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our resources, families can contact their local PWSA chapter through our online chapter locator, or join one of our supportive Facebook groups by reaching out via email.