Based in Saint Marys, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering families affected by Prader-Willi syndrome through crucial support and resources. Our Family Support team is here to provide accurate information and compassionate assistance from the moment of diagnosis, ensuring that families have the tools they need to navigate this journey. We offer a range of services including parent mentoring, nutritional education, meal planning, and behavior management support, alongside guidance for navigating Medicaid, insurance claims, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Reach out to your local PWSA chapter through our online locator, or connect with us to join one of our supportive Facebook groups and become part of a community that truly cares.