Based in Salem, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families through a wealth of supportive resources. Our Family Support team is committed to providing reliable information and personalized assistance as families navigate the challenges following a diagnosis. We offer vital services such as parent mentoring, nutritional education and meal planning, behavior management support, and assistance with the application and appeal processes for essential benefits like Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support, families can utilize our online chapter locator or reach out via email to join a Facebook Support Group, ensuring that no one has to face this journey alone.