In Shady Spring, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital resources and compassionate support to individuals diagnosed with Prader-Willi syndrome, their families, and caregivers. Our Family Support team is a trusted ally for families during the challenging moments following a diagnosis, providing essential information and comprehensive assistance. We offer a variety of services, including parent mentoring, nutritional education and meal planning, behavior management support, and guidance through the application and appeals process for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). By connecting families with the right tools and support, we aim to enhance lives and empower caregivers. Reach out to your local PWSA chapter using our online locator for assistance, or email us to join one of our supportive Facebook groups.