Located in Shinnston, WV, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals with Prader-Willi syndrome and their families through compassionate and comprehensive support. Our Family Support team is a lifeline during the critical moments following a diagnosis, offering reliable information, parent mentoring, and nutritional education tailored to specific needs. We provide guidance on behavior management and assist families in navigating complex systems such as Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). By connecting families to resources and fostering community, PWSA is committed to improving the quality of life for those affected by Prader-Willi syndrome. To access our support, families can reach out via our online chapter locator or request to join one of our Facebook Support Groups for ongoing connection and encouragement.